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Endometriosis in Memphis, TN
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Thirteen Things You Might Not Know About Endometriosis

* Endometriosis is one of the top three causes for female infertility. Up to 40% of women with “endo” will wind up with some degree of difficulty conceiving.
* The average woman with endometriosis will experience symptoms for 4 years before bringing it up to her doctor, it then takes an average of an additional 5 years to get a diagnosis.
* While endometriosis commonly affects the reproductive organs, urinary tract, and the bowels it has been found almost everywhere in the body (i.e. the lungs).
* There is no such thing as being too young to have endometriosis. Symptoms can appear as soon as with the first cycle.
* The ONLY way to know for sure if you have endometriosis is to have surgery by a doctor familiar with the disease.
* Ultrasounds, bloodwork, CT scans, MRIs and manual exams can all come back as normal even with extensive disease.
* Endometriosis causes adhesions or scarring wherever it is present. As the disease progresses organs can actually become fused together. Not only can this be painful but it can cause disfunction in the related organs (i.e. intestinal or urinary obstruction). The only treatment for adhesions is surgery, which itself causes more adhesions.
* As the disease progresses it can result in a condition known as a “frozen pelvis. This is when all of the pelvic organs and even the bowels fuse all together.
* While many women find that symptoms improve after menopause (natural or chemically/surgically induced) this is not always the case.
* Women can continue to have active disease even after menopause or hysterectomy.
* While there are many and varied treatments, ranging from surgery to hormone therapy and others, there is NO CURE. If you have endometriosis and your Doctor tells you that A B or C will “cure” your disease run, do not walk, and find someone who knows what they are talking about.
* The disease appears to be hereditary in some shape or form. If you have a mother or sister with endometriosis you are 7xs more likely to have it than the genral female population.
* When diagnosing endometriosis, many doctors will only look (during surgery) for black or “powder-burn” colored implants. However it has been shown that endometriosis can come in a wide array of colors and appearances. Endo can appear black, red, pink, white, yellow, brown, blue and even clear.

Source: http://purplemoongarden.wordpress.com/2006/08/02/thursday-thirteen-health-realted-endometriosis-facts/

Additional sources are listed on the website itself.

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Out of sight, out of mind. [userpic]

x-posted to my personal journal...cut for length.
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Hi, all - my name is Bonnie. I live in a little town outside of Memphis, and have lived in this area all but 4 years of my life. I'm 22 (23 next month), and was "officially" diagnosed (but without the aid of a laparoscopy or ultrasound) with endometriosis earlier this year.
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So there's that.

Out of sight, out of mind. [userpic]

If you're reading this, you might be one of 3 people:

1-Someone who suffers from endometriosis.
2-A friend/family member of someone suffering from endometriosis.
3-A curious passerby who's heard of endo, and either wants to know more about it, or just stumbled here for a definition. Or just stumbled here. Hey - I'm not picky. :-)

The thing these three type of people listed above might have in common is: They're all from Memphis, or are connected in some way to someone in Memphis by endo. Truthfully, I don't care if you're in New Jersey, Oregon, California, Canada, Virginia, the UK...wherever. If you're connected to Memphis, you're welcome here.

As mentioned in the userinfo, there is only ONE rule in this community: be respectful, please. There may be things written in here that do not mirror your beliefs or experiences, and you know what? It's really okay if they don't, and there's no need for you to combat something someone says *just* to prove a point.

And I'll repeat again what the consequences of being a doody-head (i.e. asshole) are: You WILL be banned. Sensitive material such as this has no room for snark. Contructive criticism? Okay. But there's a fine line, and if you cross it, you're gone. I just wanted to make that clear.

Please feel free to write an introductory post telling who you are and why you're here. History is optional...if you're a sufferer, please say as much (identification purposes only, for comments), but don't feel obligated to tell us your life story if you're not comfortable. All in good time. If you're a friend or loved one, tell us why you've decided to come into this community. If you're a curious bystander, let us know.

Questions? Comments? Go for it.

I'm not a wealth of knowledge by any stretch of the imagination, and this community is merely a place where people with a similar interest/hurdle in life can come and converse freely about the topic without fear of embarrassment...and this community happens to be centered around one location, just to give people a sense of, "Okay, so Jane Smith is going through this, too, and she only lives a few miles away..." This makes people feel less alone, and with a disease like endometriosis, that's an important feeling.

Updates to the userinfo page on specific discussion topics (i.e. public knowledge type things, not personal items) will be updated as they come, for easy reference.

So...again, welcome to the community. If there are any problems you wish to report, or any concerns/suggestions, please do not hesitate to email me at endo.memphis@gmail.com.

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